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News — Rare Diseases

Hirschsprungs Awareness Month

Children's Health Health Hirschsprung's Disease Jasper Rare Diseases

Hirschsprungs Awareness Month

This month marks the first ever Hirschsprungs Disease Awareness month - so I'm doing my bit to spread awareness of Jasper's disease. Many of you already know, earlier this year our gorgeous blondie boy was diagnosed with this very rare disease. Usually picked up within the first few weeks of life, he managed to get through the radar and with his late diagnosis came its own problems.  Hirschsprung's is considered a rare disease affecting 1 in 5,000 births (4 times more common in boys than girls!). Basically, it's when the ganglion cells, that move poop through your intestines, are missing....

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